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Hypermobile Ehlers-Danlos Syndrome

Our patients with hypermobile Ehlers-Danlos Syndrome (hEDS) have the choice of scheduling routine physical therapy evaluations and follow ups for a specific injury, or a consultation to discuss general treatment strategies. Along with the support of evidence based research, the focus of physical therapy is narrative care to determine the best treatment strategy for each individual patient. We will figure out the best plan of action to safely and effectively reach your chosen goals.

Dr. Patricia Stott, PT, DPT, ATC, CHT has been working with patients diagnosed or suspected to have hEDS for over a decade. Having hEDS herself with the associated Mast Cell Activation Syndrome and Autonomic Dysfunction, she has spent a good deal of time researching treatment strategies and learning how to manage and maintain balance while staying active and as healthy as possible. Dr. Stott continues to reach those with hEDS outside of the clinic with a blog designed to help those with hEDS, MCAS, and Autonomic Dysfunctions with health, diet, and fitness tips (The Hungry Zebra).

Physical Therapy evaluations and follow up appointments are approximately 30 minutes in length and will be performed in the office to address specific injuries or issues that can be treated formally in a clinic environment (one or two troublesome areas). A treatment plan will be established with a home program to follow as well. Aquatic therapy may be a part of the treatment process as well if needed. These appointments will be billed through the patient’s insurance company if applicable and the appropriate copay or coinsurance will be collected at the time of appointments.

Consultations for more general issues and multiple complaints that the patient wishes to discuss with Dr. Stott are scheduled for 45 minutes and are an out of pocket cost to the patient. These appointments are commonly used for those trying to establish a fitness routine appropriate to the patient at the time, discuss multiple joint issues and general treatment strategies, and/or determine what sort of care or follow up may be needed for particular complaints.

Currently Dr. Stott is treating full time out of our Golden location. When you call to schedule your appointment, be sure to let the staff know you are calling for an appointment with Dr. Stott related to hEDS and which type of appointment you wish to make (an evaluation for injury or a general consultation). Please arrive 20 minutes early to the first appointment to fill out the required paperwork. Feel free to bring in or fax us additional medical records for review. If for any reason you arrive late for your appointment, you will have an abbreviated session, so please be sure to arrive as scheduled.

 

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I tore my groin very bad playing hockey. I did a lot of research and chose Dr. Anne-Marie Fox for some IMS therapy. I went for 3 applications and the healing ...

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